Helpful Links

A non-profit, volunteer-driven organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis.
CCFA has great information on their site for people affect by IBD (Inflammatory Bowel Disease). They hold a number
of fundraisers throughout the year such as the Take Steps Walk or the Team Challenge half-marathon training program.


An awareness movement supporting people with Crohn’s disease, ulcerative colitis, j-pouches and ostomies.
They also sell a line of “Ask Me” t-shirts to help initiate conversation and spread awareness.


The Intense Intestines Foundation’s mission is to help patients in their journey with Crohn’s disease, ulcerative
colitis and ostomies by connecting, supporting and educating those with IBD and their loves ones by promoting
a healthy lifestyle.


The Colon Cancer Alliance’s mission is to knock colon cancer out of the top three cancer killers. We are doing
this by championing prevention, funding cutting-edge research and providing the highest quality patient support
services.


Patient & Caregiver Support Group: Toms River, NJ
99 Rte 37 W, Toms River, NJ 08755, USA

Day: 3rd Wednesday of the Month
Time: 6:30-8:00pm
Location: Community Medical Center, 99 Route 37 West, Toms River, NJ
Leader: Nicole Pace-Addeo, [email protected]

Please pre-register before attending by contacting group leader, Nicole Pace-Addeo, at above email address.

A diverse group with both Crohn's and Ulcerative Colitis patients of all ages and experience levels. The primary focus of the group is to help educate and inspire patients and caregivers to remain optimistic and promote research for alternative treatment options and supplements. The group is caring, helpful and fun. Additionally, they host a private, online Facebook group where members can ask questions or post comments completely safe from outside eyes. Please feel free to join their group at www.facebook.com/groups/CCFATR.


Ostomoy Blogs: 

Uncover Ostomy Uncover Ostomy’s mission has been, and always will be, to break the stigma surrounding the ostomy, to spread positive awareness of the life-saving surgery, and to encourage body positivity for those with ostomies.

The Stolen Colon: Living Beautifully with an Ostomy  ~ Exactly what it says!

O stomy Outdoors ~  Heidi shows that it’s possible to do athletic, rigorous activities with an ostomy.

N ewbie Ostomy ~ A place for new ostomates to learn about their ostomies. 

So Bad Ass ~  Talking IBD, Colitis, Crohns, Ostomies, Jpouches and awesomeness. (Sam deals with body image issues).

Vegan Ostomy ~ Supporting the IBD, Ostomy & Vegan Community. (Yes, VEGAN Community)

Meet An Ostomate ~ A place for support, dating and friendship with other ostomates.


Other Online Ostomy Support Groups:

Inspire Ostomy support Group & Discussion Community - Join many others who understand what you're going through and are making important decisions about their health.

O stomyland - A place to get advice, find answers and make new friends.

MDJunction - an active center for Online Support Groups, a place where thousands meet every day to discuss their feelings, questions and hopes with like minded friends. 

Ostomates  - A community where you can discuss ostomy-related challenges, solutions and products with like minded people.

                   For Ostomates and WOCNs


Basic Ostomy Skin Care - A Guide for Patients and Health Care Providers

      
People who have a stoma often share many of the same questions and concerns. This best practice document provides answers to some of the common questions that people ask about the day to day care of the stoma and the surrounding skin. The answers are directed to the person who has a stoma but may also be helpful for the nurse as a teaching tool.

      
If you have questions about the information in this document, problems with leakage, or skin problems around the stoma, contact your WOC nurse or your health care provider.

All information provided by WOCN and can be found at www.ostomy.org

For Parents of Children with Special Needs


Check out the INTERACTIVE PLANNER FOR CAREGIVERS

Do you have a child that has special needs? This Interactive
Planner for Caregivers helps assist caregivers and family
members with planning and recording their child's daily schedule.
Features allow users to record medication, meals, emergency
contacts, games, and other daily routines. The planner can be
printed and provided to caregivers and families once its filled out.

Visit   www.knowledgeinitiative.org/planner for more details.

Other Resources you might find Helpful

Did you Know:
Sleep disorders vary among different patient populations: The rates of sleep disorders reported by cancer patients vary based on the type of cancer they are being treated for and the type of treatment they are receiving. Some patient populations experience a 75% chance of sleep disturbances, while others experience rates as low as 25%.
Sleep problems can continue after treatment ends: Approximately 25% of cancer survivors continue to report sleep disturbances or daytime fatigue. This is due in part to the long-term effects of some treatments on the body; it can also be a lingering effect of experiencing the trauma of a life-threatening illness. Fortunately, both physical and mental causes of sleep disturbances are treatable, and patients have many options available for returning to a healthy sleep cycle.


Click here for BestMattressReviews' helpful guide to choosing the right mattress.

You can also click here for The Comprehensive Guide to Sleep Deprivation: Causes, Symptoms & Treatment.
__________________________________________________________________________________________________________________________________________________
Are you the adventurous type? Is Camping your thing... or have you ever wanted to try it out? Click here for WellingtonWellies
The Ultimate Camping Guide: Checklists & Essential Tips for Campers

Apps for Your Phone

Sit Or Squat: Restroom Finder
By P&G Productions

Description
*** Need to go, on the go? SitOrSquat by Charmin can help you find public restrooms near you or where you’re planning to travel. Install SitOrSquat and search, view, rate and add public restrooms to help you, your family and others enjoy the go, on the go. ***

​FEATURES:
• SEARCH and VIEW public restrooms nearest your current location on a map or in a list.
• MAP results with an interactive, location-based map.
• REGISTER using Facebook Connect, Twitter or the SitOrSquat account to Rate, Add, Upload Pictures, and Bookmark bathrooms.
• RATE restrooms by choosing “Sit” (you enjoyed the bathroom) or “Squat” (it could be better) and provide your relevant experience and honest opinions, including pictures.
• ADD public restrooms to the database by entering basic location information and optional details like pictures and features.
• FILTER results by choosing specific features such as Free, Handicap Accessible, Sit-or-Squat Rating or Baby Changing Table.
• BOOKMARK your favorite locations or map out locations for an upcoming trip.
The SitOrSquat by Charmin app lets you access and record bathroom information wherever you go. All of our restroom content is added by YOU, our loyal users. We currently have over 100,000 bathrooms and we need your help in growing that database. Join the SitOrSquat movement! Download the app and add/review a bathroom today! We all go. Why not enjoy the go with SitOrSquat by Charmin.

NOTE: SitOrSquat uses Facebook Connect. Opening this app may send personal information about you or your device to Facebook.

SitOrSquat ON THE WEB
• Visit sitorsquat.com for our website version.
• “Like” Charmin on Facebook.
• Follow us on Twitter @Charmin or tweet #tweetfromtheseat
• Visit charmin.com for more information on versions for other mobile devices.

Trust is a cornerstone of our corporate mission, and the success of our business depends on it. P&G is committed to maintaining your trust by protecting personal information we collect about you, our consumers. View full details of our Privacy Statement:

http://www.pg.com/privacy/english/privacy_notice.shtml

Free

Category: 
Travel
Updated: Dec 29, 2014
Version: 2.1.1
Size: 17.3 MB
Language: English
Seller: P&G Productions
© 2012 Procter & Gamble
Rated 4+


Available for Android and iPhone .

UVLens - UV Index
By Spark 64 Ltd

Description
Exposure to sunlight’s ultraviolet radiation (UV) can damage your skin, cause sunburn and increase your risk of skin cancer. UVLens shows you when you need to take care and when you can safely enjoy the sun. 

Features:
• Plan out the best time to be outside
See the UV index forecast for the day and when it’s safe to be outside.

• Find your burn risk
Find out how long you can spend in the sun without sunscreen by taking a personalized skin type assessment.

• Sunscreen Reminder
Discover how your sunscreen protects you, and get reminded to reapply.

• Widget
See the current UV and your burn risk right from your home screen.

About
The UVLens app is being developed by the team at Spark 64 Ltd, a company making products to help people live healthier outdoor lives. Contact us at [email protected] 

Follow us
www.facebook.com/UVLens
twitter.com/uvlens

Free

Category: 
Health & Fitness
Updated: May 09, 2017
Version: 2.1.3
Size: 36.2 MB
Languages: English, Simplified Chinese
Seller: Spark Sixty Four Limited
© Spark Sixty Four Ltd
Rated 4+

Available for Android and iPhone .